Wednesday, October 26, 2011

The eyes of a child...

Two weeks ago today, I was working a split shift. I felt like trash, and wanted nothing more than to come home and be on bedrest like my doctor wanted. There wasnt even a seed planted in my mind that two weeks later, I would be living my life day to day, staring at machines and tubes hooked up to my tiny precious child. I'm starting to understand what they all do, and it really isnt as scary as it looks the first day you get there and can barely see your child through all the wires. Theres the PICC line in his arm, which looks like a bunch of craziness, but its just so they can easily administer medication if he needs it, and draw blood if they need it. Then, theres the NG tube up his nose. Thats easy, thats where the food goes! Theres a bunch of leads attached to him, monitoring his vitals, and thats about it. Really not that much, if you think about it!

She only looks sweet... (not really, shes a good kid)
His doctors are constantly very impressed with him. Everyday they tell us how well he is doing. Nothing makes parents happier than other people saying how great their kid is. He really has surpassed everyones expectations. Only two weeks old, and will be completely off respiratory assistance by the weekend (we hope) and also in a few days, he will no longer be recieving TPN so  he will be WITHOUT the two space-stealing poles that sit next to his bed. AND when he is off those two things, we will be allowed to carry him to the windows, so that other family members will be allowed to get a peek at him (if they feel like driving the hour + to look at him through the window)

We arent sure how long they want him to stay there once he is weaned off everything and receiving full feedings. I know they want to continue to monitor his brain and hydrocephalus, and hopefully they will be able to put the shunt in before we get discharged. Just so that we wont have to end up going back right after we get discharged. We are hoping once he is stable and eating out of a bottle, they will let him transfer to CVPH so we wont have to travel so much to see him. Hopefulyl medicaid wont mind paying for the transport!

Our little guy is starting to show us quite the personality. For instance, he hates having goop in his nose and throat and mouth. He will scream until they suction him. He likes his pacifier quite a bit too...and hes definitely a belly sleeper! Hes such a sweet baby and loves to snuggle with Jason and I. I cant wait until hes home and can really snuggle with us! Hes still so small right now, Im half afraid Ill break him by moving him...
Sweet baby boy <3



This week we are bringing Abbie over to VT with us for a few days. She cant go in the NICu so we will be taking turns watching her while the other person is in the NICU. Hopefully she is good since I cant pick her up, or run after her, or drive her anywhere hahaha. (technically Im not supposed to even be walking much of a distance either) I cant wait until she can meet her baby brother...They will love each other <3

1 comment:

  1. He is so beautiful and alert and he knows who loves him :)

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