Thursday, October 20, 2011

All that's happened in 7 short days...

snuggling with mommy
One week ago (and a few hours), our lives were changed forever when our little miracle, Rowan, decided to make his appearance two and a half months earlier than expected. It feels like its been months, but at the same time, it feels like it was yesterday...

Today we dropped Abbie off at school, and drove the long way around to the hospital, since we were up near the bridge anyway...we arrived around 10:30, and discovered that we were going to be dealing with a different nurse than usual...I know thats normal...but this one didnt even introduce herself to us. We had missed rounds, so she told us that rounds were "good". That wasnt really as informative as I wouldve liked, adn I was hoping we would happen upon a doctor or med student at some point during our visit.

He hates that thing taped to his wrist...
We knew we couldnt stay as long as usual, since we had to come home and get Abbie. Cant ignore one for the other...still trying to figure out how to balance...its hard for her to understand that her brother is a little sick and needs to stay over there for a while...

I got to snuggle with our little man today. It was kinda tough with the headgear in the way...I wish we couldve taken it off him since he does fine without it...but oh well. I was only allowed to hold him for about an hour, because he had to go back under his bili lights.

We are hoping the headgear goes away soon...
He got to move out into the main room today, and into a new bed! now, instead of the open bed, he gets an isolette! it kind of sucks that there are only little portholes we can put our hands in...but itll be good in the long run. it means hes making progress!

One of his doctors came to see us before we left, and she told us that they are going to be turning down the pressure on his CPAP, since hes doing so well on it. and hopefully in a few days we will get a much less intrusive apparatus on him.

This is his new bed. Its completely enclosed so its nice and quiet and climate controlled
She also told us that they are starting to see tiny cysts near the ventricles in his brain. She said they are going to do an MRI in the next week so get a better look. She said that its possible it could just be somethign thats always been there and his brain is just used to working around them. We are going to stick with that unless we hear differently. Got to stay positive for our little guy.




In the past week he has gone from completely using a ventilator, to overpowering the bubble CPAP hes on now...(hopefully that will be gone in a few days). He's had major spinal surgery, which was super successful! Hes been taken off all of his medications and painkillers, and is now only on nutritional IVs and caffeine to help stimulate his breathing...He's such a little warrior...I cant wait to see how far he gets in his second week of life!

1 comment:

  1. You are staying super positive and that is what he needs the most, You will find there are nurses(and Drs, and therapists)that you absolutely love, some you just like, some you can barely tolerate and some you will never see eye to eye with but its not about them its about Rowan. High flow O2 should be next after CPAP and it so much easier to deal with and you will start to be able to take him out of the isolette and put him back in as you need too, more control and more day to day care its all a process..and let me tell you Rowan is going about it much quicker than my little guy so very soon this will all be a memory :)

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