When the evening shadows and the stars appear, and there is no one there to dry your tears, I will hold you for a million years...

Its strange to think of our lives as being "incredibly busy" when they basically consist of sitting around at home (except jay went back to work, so he sits there) and sitting in the hospital. And sitting in the car driving between the two places. Yet every day I am completely wiped out. I think Ive just gotten to the point where I wander around like a zombie, only processing the important information I get...I had to go and get an iced coffee to make it through the day today...or else I wouldve been back in my room asleep all day instead of cuddling with my sweet boy...Have to get all the cuddles in that we can, he has a busy few days ahead of him...

It appears that tapping the reservoir is not as productive as they would like it to be...theyve had it do it every other day for the past few days, and it helps at first, but by the next day it seems to be bothering him again. I cant imagine having a constant headache...poor bug! He hasnt been having alot of alarms, but when he does have them, he seemed to be needing pretty vigorous rubbing to get him to take a deep breath and get the oxygen flowing...

He also seems to be having trouble swallowing his saliva and whatnot and its been building up in the back of his throat, and needing to be suctioned out pretty regularly...This is probably caused by the excess fluid in his brain putting too much pressure in the wrong places. With the Spina Bifida, his brain isnt exactly where its supposed to be in his head, its pulled back a little bit. which can cause swallowing issues.

Hopefully, Rowan will have a shunt placed tomorrow or Wednesday, that will continuously drain this excess fluid into his belly, where it will be absorbed, so that we will not have to continue on this cycle of waiting until it gets bad, then tapping, then waiting for it t get bad again, then tapping, etc etc...and it should stop the pesky headaches that the poor bug keeps having....at this point im a big fan of ANYTHING that will help him feel better...I just want a happy healthy boy to bring home and cuddle...