Wednesday, November 16, 2011

35 days, 4 pounds, countless milestones...

For long term NICU parents, there comes a point when you look back over the past however many days, weeks, or even months (though we havent quite made it that far yet), and you cant believe that its been that long, because it was just yesterday that you were terrified, wondering if your child would be okay, and its been 35 whole days, and look how far we've come from where we started. Its the strangest feeling in the world. it was just yesterday, but it was ages ago all at the same time...

There never seems to be enough time in the day to accomplish all the things I need to do. I constantly feel like im not in the right place. Sort of going through the motions until I can go to VT again. Things are getting better with Abbie. Now when she throws a tantrum, we ignore it. It doesnt last as long that way...shes not getting the reaction shes looking for...now if only we could get her to nap....I really wish she hadnt chosen right now to outgrow naptime...

Over the weekend, Rowan got moved between the NICU and the transitional nursery two separate times, only to finally end up back in the NICU, where we requested that they please not move him again until he is ABSOLUTELY ready for it. Apparently he was having Dsats, meaning his blood was not oxygenated enough. He usually self corrected, and only needed a little O2 support once. He seems to have the issue when hes in a very deep sleep. His brain forgets to tell his body to breathe deeply. Theres no real reason that theyve been able to see for why he does that. As usual, everyone assumes its his brain, even though hes had stable ultrasounds for the past week. They tapped his reservoir yesterday morning, to see if it would help. It appears to have. The doctors feel like we should just continue with the course we are on, and that he should be tapped as needed, and eat and grow until hes big enough to have a shunt placed. At least the shunt will continuously drain fluid, instead of having to wait until it builds up and causes issues.






Oh, and our little bug is finally 4 pounds....one more pound and he will have DOUBLED his birth weight...and he will still be three pounds less than his sister was when she was born...oye. And on that note, I am going to go watch the lion king with Abbie and Jason...wish our little man was home to enjoy it with us.... <3

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